The Foundation

The Foundation was founded following the death of Nick Smith, an amazing man who was struck down by the cruellest of diseases – Motor Neurone Disease.

Diagnosed in September 2017 at the age of just 37, Nick – husband, father to two young children, son, brother, grandson, uncle, godfather, colleague and friend – died just 102 days after being diagnosed on 20 December 2017 just two weeks after his 38th birthday.

A legend of amateur rugby league, Nick played with Siddal ARLFC from the age of eight making 400 appearances for the team. He played professionally when younger with both Leeds Rhinos Academy and Sheffield Eagles before embarking on a career as an accountant.

After his diagnosis, family, friends and colleagues came together to raise money to support him and his family with amazing generosity and support. This Foundation has been set up to ensure Nick’s legacy is one of continued support for research into MND, for young children who suffer bereavement with the death of a parent and for the development of rugby league. Three causes we know Nick would have been passionate about. We support them in his name, as his legacy.

The Nick Smith Foundation is a registered charity in England and Wales – number 1178182.